I am beyond exhausted. This week has been very tiring, but last night put me over the edge. I did not sleep for even 5 minutes.
James has been in some pain, but mostly if the spot ws touched. Yesterday his neck got really swollen and it was very painful. He couldn't even give hugs without crying and when Daddy tried to kiss his neck, he cried for 5 minutes. It is heartbreaking!
Last night his neck swelled up more and is about the size of a baseball. He cried all night long even on tylenol and then motrin. They are calling in Tylenol with codeine. He cannot get calm enough to fall asleep so I know it really hurts.
I feel so sad. He was perfectly healthy and his mass was hard to see for most people. I am questioning my decision to do this and also really reliving the emotions I had when he was so difigured as a baby.