James was born with a birth defect. He was born with a Lymphatic Malformation; a condition that affects 1 in 4000 live births. Lymphatic malformations are rare non-malignant masses consisting of fluid-filled channels or spaces thought to be caused by the abnormal development of the lymphatic system. Often described as a sponge-like collection of abnormal growths that contain clear fluid. Macrocystic malformations are large, soft, smooth clear masses under normal or bluish skin. Microcystic malformations present as small, raised lesions containing clear fluid. Superficial (visible) lesions may present as tiny clear bubbles that sometimes become dark red due to bleeding. There is no known cause for this condition and it is not genetic. We found out our child had this condition at our 28 week ultrasound.
James was a lucky one as he has had amazing treatment and outcome from that treatment. Many children born with LM live with tracheotomy, feeding tubes, and ongoing treatments.
I am part of a FB group Lymphatic Malformation Awareness Group and am reminded every day how lucky we are. James is thriving and happy. There was a time each day was filled with questions of survival, treatment plans, and fear. I am very thankful for the health of my family!
Here are some previous posts on this journey:
Blog posts on LM