I don't say it much, but I am thankful!

James was born with a birth defect. He was born with a Lymphatic Malformation; a condition that affects 1 in 4000 live births. Lymphatic malformations are rare non-malignant masses consisting of fluid-filled channels or spaces thought to be caused by the abnormal development of the lymphatic system. Often described as a sponge-like collection of abnormal growths that contain clear fluid. Macrocystic malformations are large, soft, smooth clear masses under normal or bluish skin. Microcystic malformations present as small, raised lesions containing clear fluid. Superficial (visible) lesions may present as tiny clear bubbles that sometimes become dark red due to bleeding. There is no known cause for this condition and it is not genetic. We found out our child had this condition at our 28 week ultrasound. 
James was a lucky one as he has had amazing treatment and outcome from that treatment. Many children born with LM live with tracheotomy, feeding tubes, and ongoing treatments.
I am part of a FB group Lymphatic Malformation Awareness Group and am reminded every day how lucky we are. James is thriving and happy. There was a time each day was filled with questions of survival, treatment plans, and fear. I am very thankful for the health of my family! 
Here are some previous posts on this journey:
Blog posts on LM

Differerences

James is old enough to understand that he looks different right now. Last night he was brushing his teeth and I noticed him looking at himself in the mirror. His right neck is very swollen and he looks very disfigured on that side. His sweet chiselled jaw line is no longer there.
Today we went to the grocery store and I must admit I was concerned that people would notice his differences. I am most concerned that he will notice someone noticing. Nothing like that happened, it was business as usual.
When we got home we were unloading groceries and I was making dinner.
James: "Mom why do I have to have this big place on my neck"
Me: " The medicine they put in to heal the pocket makes it swell. There is an infection so your body will heal it up"
James: "what's an infection"
Me: "it means you have an illness in your neck"
James: " I wish I didn't have to have a place"
Mommy" "It's because you are a very special boy. When you were born your neck was swollen and I knew you were special the minute I saw you. Then it went away and it will go away again"
James(starting to cry): "But my smile is different when I have this"
Me: "your smile is always the same to me, James"

I am crying now, but I did not as I said it. I hope his smile can be the same to him again very soon!

The Dr. said the swelling should start to go down after 10-14 days. The fever, swelling, and pain are WNL but still so unpleasant to see him go through. Jim and I are praying every minute that this was truly the best choice!